Woman's 10-Year Journey with Undiagnosed Parkinson's: From Hidden Symptoms to Treatment Success
Non-motor symptoms like depression and anxiety often precede a Parkinson's disease diagnosis by years, as demonstrated by Veronica Brown's journey with the condition.
Family of four smiling together
For over a decade, Brown experienced chronic fatigue, depression, and anxiety during the prodromal (hidden) stage of Parkinson's disease. According to Dr. Alessandro Di Rocco, neurologist at Northwell Lenox Hill Hospital, the brain loses dopamine-producing cells years before motor symptoms appear.
In 2018, Brown developed tremors in her foot, followed by slower walking and hunched posture, leading to her Parkinson's diagnosis in 2020. She initially found relief with carbidopa-levodopa medication, but its effectiveness diminished over time.
By 2024, Brown opted for deep brain stimulation (DBS), a surgical procedure involving the implantation of a device that delivers electrical stimulation to movement-controlling areas of the brain. Dr. Francisco Ponce at The Barrow Neurological Institute performed two DBS surgeries using the innovative Percept RC technology, making Brown one of the first patients worldwide to receive this advanced treatment.
The results were remarkable: Brown experienced better symptom control, reduced medication needs, and renewed energy. She went from taking medication 7-9 times daily to having steady symptom management, enabling her to resume activities like baking.
Despite DBS being FDA-approved and proven effective, only 4% of eligible Parkinson's patients receive it. Factors limiting adoption include:
- Hesitation about brain surgery
- Age restrictions
- Medical conditions that increase surgical risk
- Cognitive changes
- Limited availability of trained neurosurgeons
Brown credits her successful treatment to her support system, particularly her husband and Parkinson's support groups. She emphasizes the importance of connecting with others who have undergone similar experiences, as each person's journey offers valuable insights and encouragement.
For those seeking support groups, resources are available through the Parkinson's Foundation and the Michael J. Fox Foundation.
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